Late Effects Survey submitted by Chad Jacobsen for Rainbow Babies and Childrens Hospital

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*1. How does your institution provide follow-up care for childhood cancer survivors?
Answer:(2)Followed in SPECIALIZED PROGRAM for survivors of childhood cancer
 
*2. What is the age cut-off for providing follow-up care to childhood cancer survivors at your institution?
Answer: (4)Other criteria- Followed through college
 
*3. Please provide phone numbers (as applicable) for referral of long term follow-up patients to your Institution.
(If not available, enter "None"):
Appointments: Answer:216-844-3070
General information: Answer:216-844-3070
New LFTU patient referrals: Answer:216-844-3070
Comments: Not Answered
 
*4. If your institution does not provide life-long follow-up care for childhood cancer survivors, please describe where the patient is referred for long term follow-up when age limitation is reached:
Answer: (2)Primary adult healthcare provider (family practitioner/internist/NP/PA/gynecologist)
 
If your institution has a specialized long-term follow-up program for childhood cancer survivors, please complete the following information:
5. Program name: Answer:Center for Survivors of Childhood Cancer
6. Program director: Answer:Chad T. Jacobsen, MD & Denny Drotar, PhD
7a. Program coordinator: Answer:Lisa Vitkus, MPH
7b. Program coordinator:  Not Answered
 
*8. What are the eligibility criteria for survivors entering your program?
Answer: Bone marrow transplant patients are eligible
Neuro-oncology patients are eligible
Other eligility criteria
3 years off therapy
 
*9. Do you offer late effects consultations to survivors who were not treated at your institution?
Answer: Yes
 
*10. What information is required for a patient being referred from an outside facility to your program?
Answer: Medical Records
Patient may self-refer into the program

11. If your institution has a specialized adult follow-up program, please provide the following information:
Program name: Not Answered
Program director: Not Answered
Program coordinator: Not Answered
 
*12. Who provides the long-term follow-up care for your adult survivors of childhood cancer?
Answer: Family Practice physician
Internal medicine physician
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