| *1. How does your institution provide
follow-up care for childhood cancer survivors?
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Answer:(2)Followed in SPECIALIZED PROGRAM for survivors of childhood cancer
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| *2. What is the age cut-off for providing
follow-up care to childhood cancer survivors at your institution?
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Answer:
(1)No age limitation - followed for life
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*3. Please provide phone numbers (as
applicable) for referral of long term follow-up patients to your Institution.
(If not available, enter "None"):
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| Appointments: |
Answer:617-632-2680 (Brain Tumor Survivors) and 617-632-5124 (for all other Survivors)
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| General information: |
Answer:617-632-5100
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| New LFTU patient referrals: |
Answer:617-632-2680 (Brain Tumor Survivors) and 617-632-5124 (for all other Survivors)
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| Comments: |
Answer:There are 2 Survivor Clinics (General Pediatric Oncology Survivors and Pediatric Neuro-Oncology Survivors)
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| *4. If your institution does not provide life-long
follow-up care for childhood cancer survivors, please describe where the
patient is referred for long term follow-up when age limitation is reached:
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Answer:
(4)Other-We provide life-long follow-up Care
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| If your institution has a specialized long-term follow-up program for
childhood cancer survivors, please complete the following information: |
| 5. Program name: |
Answer:David B. Perini, Jr. Quality of Life Clinic and Stop & Shop Neuro-Oncology Outcomes Clinic
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| 6. Program director: |
Answer:Lisa Diller, MD and Christopher Turner, MD
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| 7a. Program coordinator: |
Answer:Kelly Neale (Perini Clinic)
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| 7b. Program coordinator: |
Answer:Abby Williams (Neuro-Oncology Clinic)
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| *8. What are the eligibility criteria for survivors
entering your program?
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| Answer: |
2 years off therapy
Bone marrow transplant patients are eligible
Neuro-oncology patients are eligible
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| *9. Do you offer late effects
consultations to survivors who were not treated at your institution?
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Answer:
Yes
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*10. What information is required for
a patient being referred from an outside facility to your program?
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| Answer: |
Medical Records
Insurance information
Patient may self-refer into the program
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| 11. If your institution has a specialized adult follow-up program,
please provide the following information:
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| Program name:
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Answer:Lance Armstrong Foundation Adult Survivorship Program
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| Program director:
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Answer:Craig Earle, MD
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| Program coordinator:
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Answer:Victoria Kennedy
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*12. Who provides the long-term follow-up
care for your adult survivors of childhood cancer?
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| Answer: |
Pediatric Oncologist
Pediatric Nurse Practitioner
Family/Adult Nurse Practitioner
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