COG Registry – Project:EveryChild
The Children’s Oncology Group maintains a childhood cancer registry of infants, children, adolescents, and young adults with cancer called Project:EveryChild, which supports current and future therapeutic clinical trials and the discovery efforts that will lead to more effective therapies, prevention, earlier detection and reductions in early and late effects of treatment.
Project:EveryChild, A Registry, Eligibility Screening, Biology and Outcome Study (APEC14B1) opened to patient accrual on October 26, 2015, replacing the former COG registry under the Childhood Cancer Research Network (ACCRN07), which closed to accrual on December 8, 2017.
Participation in Project:EveryChild is available to all families of children diagnosed with cancer across the country at participating COG institutions, independent of the patient’s enrollment on a therapeutic trial. The study collects demographic and epidemiologic information and takes extra tissue available from children who must undergo a diagnostic procedure and stores that tissue in COG’s biorepository. Information on how effective the child’s treatment is will be maintained securely in COG’s data center, allowing scientists to link laboratory findings to outcome data. Additionally, subjects may consent to banking of biomaterials for ongoing and future research and to be contacted for future biology, epidemiology and survivorship studies.
By sharing biospecimens and research data, the Children’s Oncology Group’s Project:EveryChild will help lead developments in the current and next generation of advances in cures for childhood cancer. Visit our Biorepository to learn more about the largest pediatric biospecimen bank in the nation.
To learn more about Project:EveryChild and its supporters, visit: http://projecteverychild.org/.